Terms & Conditions – King’s College London and Women’s Wellness with Type 2 Diabetes Programme (WWDP)

Disclaimer

The information presented on this site and for our programme is for general use only and is not intended to provide personal medical advice or substitute for the advice of your physician. If you have questions or concerns about individual health matters or the management of your diabetes, please consult your GP.

Welcome to WWDP: Women’s Wellness Type 2 Diabetes Programme

Before we get started we would like to go through what you can expect from the WWDP.

THE WWDP AGREEMENT

Throughout WWDP, you will be supported by the principal investigator. The principal investigator will contact you after you are interested in participating in the WWDP. Facilitator who is peer supporter will see all posts/messages and support in the online peer group.

Below is an Agreement which outlines what you and your facilitator will do during the programme.

OUR AGREEMENT

Me

  • I understand that WWDP is not an emergency programme. If I am feeling very distressed, I will contact one of the options below:
  1. Share your concerns making you feel distressed on the peer support online group. The purpose of the group is to facilitate peer support when things are feeling tough and when you experience success.
  2. Your usual diabetes provider: They provide a medical diabetes examination, healthcare, diabetes symptom management and when necessary, your diabetes provider can refer you to Mental Health Service for further examination, support, and care.
  3. Diabetes UK: Diabetes UK has trained counsellors who provide a free and confidential talk about uneasy emotions. You can get in touch with their highly trained advisors for support, advice or just a chat. You can tell their helpline on 0345 123 2399, Monday to Friday, 9 am to 6pm.
  4. Samaritans: It’s a 24-hour service that provide confidential telephone support for adults who have difficulties with their emotions. Helpline: 116 123 (UK).
  • I understand that my facilitator will regularly see my messages during peer group, but they may not be able to respond to messages immediately.
  • I understand that the principal investigator and facilitator is able to see my messages through the programme. This will help them provide the most relevant support for me.
  • I understand that I will have access to facilitator support for 12 weeks from the time I register and have access to the WWDP. Four months after I have registered, my access will expire.
  • I understand that I may receive reminder emails or messages from the programme.
  • If technical issues arise, I understand that the IT support team may see my email address. All other personal information is encrypted and cannot be viewed.

Principal Investigator 

  • Will keep my personal contact information private.
  • Will ask me some questions before enrolling me to the WWDP in email
  • Will review my progress regularly.

Peer Supporter (Facilitator)

  • Will see my conversation through the online posting/messaging platform thereafter.

Data Security and Privacy

OVERVIEW

In this section we outline the data processes that happen as part of WWDP and explain what data will be asked and what happens to that data.

Data security and confidentiality are a priority for WWDP. As well as the data security processes we outline below, WWDP will log you out automatically after 2 hours of inactivity.

We also recommend:

  • logging out whenever you have finished working on WWDP
  • keeping your WWDP username and password in a secure place
  • not sharing any personal information or contact details with your facilitator via posts or online messages (this is explained in more detail below)

DEVICE SECURITY

Your security and privacy on WWDP depend on the device you use to access the website. To ensure maximum security, we recommend you keep your software up-to-date, choose strong passwords which are not easy to guess, use security protection software and avoid unsecured public internet connections.

WHO DEVELOPED WWDP?

First version of WWDP was developed by a team of researchers at King’s College London University and Griffith University. You will have a newly designed WWDP by principal investigator at King’s College London and works in partnership with:

  1. DAWN – a software development company who contracts to DAWN and hosts and maintains the website. DAWN meets NHS Digital standards for privacy, confidentiality, and security as well as GPDR data privacy and security standards.

PERSONAL DATA

What personal data/information will be asked via WWDP me for? 

WWDP is a website. So that you can use WWDP, we need you to register with an email address. WWDP is part of a research study. This means that we may also ask for the following information:

  1. Your name/surname
  2. Your email
  3. Username and password (this will be created by the PI while register you on the portal)

Why does WWDP need to ask this personal information? 

Because peer support group of WWDP is part of a research study, the research team needs accurate and up-to-date information. Collecting this information means that your principal investigator can monitor your progress as well as register you to WWDP.

Where are my data kept? 

The WWDP website is hosted by DAWN. However, your data only will be accessed by research team. This database is located in a securely protected and approved provider cloud solution. When you register for WWDP you are connected to a name and an email as you need the name to set up a portal login. Additionally, because your data is confidential, WWDP research team is held your data as anonymous.

Who can access my personal information? 

We have to follow strict privacy, confidentiality, and online security procedures.

Your personal information will only ever be accessed by the research team. WWDP will never share your information with other parties without your written consent. However, if access is needed to your WWDP account due to a technical error a member of the technical team have access only for this.

Does WWDP collect other information about me? 

Every account has a username, email, first name, and last name and password  to log in to the portal (WWDP). However, we will not collect any data throughout WWDP website.

Does WWDP share my information with anyone else? 

If you have a technical problem or question and you submit a question/concern via our team contact, then King’s College London research team will receive the following information:

  1. Your email address
  2. Information you written in your message

In order to solve a technical problem, support from the DAWN software team who programmed WWDP may be needed. We will never share your information with DAWN technical team or ask them to look into the problem without gaining your informed consent first.

WWDP will never share your personal information with anyone without your consent.

WWDP – Contact us here

Links & Podcasts

Some sessions or podcasts may contain links to other websites which are owned, operated or maintained by third parties. If you click on a third-party link, you will be directed to that website in a new tab. We provide these links as helpful sources of further information, not as an endorsement, authorisation or representation of our affiliation with that third party, nor as an endorsement of their privacy or information security policies or practices. We do not have control over third party websites and we do not have control over their privacy policies and terms of use.

Who can see what I write in WWDP? 

When you join WWDP, you will see peer supporters as facilitator through closed peer support group. Your facilitator is a non- professional who is between 45-65 age range and living with type 2 diabetes and will provide you with support as motivation during your time on the programme by online messaging. Your facilitator will only be able to see your name/surname that you used to access closed peer support group.

In order to ensure that their support is relevant and specific to you, and to ensure your wellbeing, your facilitator will be able to see your messages so your conversation on the peer group and i.e. your goals and process.

Principal investigator will be able to review your online posts/messages with your facilitator and group. The content of these posts/messages will be kept confidential at all times.

The WWDP Team at King’s College London 

Chief Investigator for WWDP: RN, MSc Deniz Bozkurt

Academic supervisors:  Professor Jackie Sturt, Dr Maria Duaso, Dr Iliatha Papachristou Nadal

The legal bits 

Information accessed by research team via WWDP will be in line with the General Data Protection Regulation (2018). Our lawful basis for accessing this information includes:

  1. Function of a public task
  2. Vital interest
  3. Legitimate interest
  4. Consent

Your rights 

Your personal data will be processed in accordance with your rights under data protection legislation.

Your rights are:

  1. right to be informed
  2. right to gain access to your data
  3. right of rectification (e.g. change inaccurate information)
  4. right to erasure (e.g. to delete records held about you on the WWDP platform)
  5. right to restriction (e.g. to stop processing information about you)
  6. right to portability (e.g. to move or transfer your data)
  7. right to object (e.g. to change your mind)
  8. right not to be subject to automatic profiling or decision making (e.g. to know if a decision was made by a computer rather than a person)

 Cookies 

The WWDP website does not use marketing cookies. This means that your browsing information is not used for advertising or commercial purposes. The WWDP website does use one type of cookie – this is an essential cookie which is used to make sure you get a consistent user experience. It is required for the website to maintain where you are up to in the programme. It also means it can show you personalised information when you are signed in.

Summary

Your personal information will be managed and accessed in line with the General Data Protection Regulations (2018) and common law duty of confidentiality.

  1. WWDP will ask for personal information to register programme. This information will not been accessed outside of research team in line with GPDR data privacy and security standards.
  2. WWDP is developed by King’s College London and Griffith University, owned by Professor Debra Anderson and Professor Jackie Sturt.
  3. WWDP will not collect any information about you.
  4. Filling in the WWDP contact us form, means your email address and typed message will be seen by the King’s College London research team.
  5. If you experience a technical problem, the WWDP research team at King’s College London will respond to your concern and gain your consent for the web-developers of WWDP to access your information.

If you have any concerns or further questions, please contact the WWDP team using the form which you can find in the Contact us page or email to deniz.bozkurt@kcl.ac.uk.

You can find more tips for staying safe online at www.cyberaware.gov.uk.

The following video also provides a useful overview of patient data – vimeo.com/264239790

WWDP – Contact Us

If you do not agree to this, please contact the WWDP team here.