Terms & Conditions – King’s College London and Women’s Wellness with Type 2 Diabetes Programme (WWDP)

Disclaimer

The information presented on this site and for our programme is for general use only and is not intended to provide personal medical advice or substitute for the advice of your physician. If you have questions or concerns about individual health matters or the management of your diabetes, please consult your GP.

Welcome to WWDP: Women’s Wellness Type 2 Diabetes Programme

Before we get started we would like to go through what you can expect from the WWDP.

The WWDP Agreement

Throughout WWDP, you will be supported by the principal investigator. The principal investigator will contact you after you are interested in participating in the WWDP. Facilitator who is peer supporter will see all messages and support in the online peer group.

Below is an Agreement which outlines what you and your facilitator will do during the programme.

Our Agreement

Me

  • I understand that WWDP is not an emergency programme. If I am feeling very distressed or need immediate help I will contact friends or family who can help, or my GP.
  • I understand that my facilitator will regularly see my messages during peer group, but they may not be able to respond to messages immediately.
  • I understand that the principal investigator and facilitator is able to see my messages through the programme. This will help them provide the most relevant support for me.
  • I understand that I will have access to facilitator support for 12 weeks from the time I register and have access to the WWDP. Four months after I have registered, my access will expire.
  • I understand that I may receive reminder emails or messages from the programme.
  • If technical issues arise, I understand that the IT support team may see my email address. All other personal information is encrypted and cannot be viewed.

Principal Investigator

  • Will keep my personal contact information private.
  • Will ask me some questions before enrolling me to the WWDP in email or an initial 30-minute telephone call
  • Will review my progress regularly.

Peer Supporter (Facilitator)

  • Will see my conversation through the online messaging platform thereafter.

Data Security and Privacy

OVERVIEW

In this section we outline the data processes that happen as part of WWDP and explain what data will be collected and what happens to that data.

Data security and confidentiality are a priority for WWDP. As well as the data security processes we outline below, WWDP will log you out automatically after 2 hours of inactivity.

We also recommend:

  • logging out whenever you have finished working on WWDP
  • keeping your WWDP username and password in a secure place
  • not sharing any unnecessary personal information or contact details with your facilitator via your notes or online messages (this is explained in more detail below)

Device security

Your security and privacy on WWDP depend on the device you use to access the website. To ensure maximum security, we recommend you keep your software up-to-date, choose strong passwords which are not easy to guess, use security protection software and avoid unsecured public internet connections.

Who developed WWDP?

WWDP was developed by a team of researchers at King’s College London University and Griffith University. You will have a new designed WWDP by principal investigator at King’s College London and works in partnership with:

  1. DAWN – a software development company who contracts to DAWN and hosts and maintains the website. DAWN meets NHS Digital standards for privacy, confidentiality, and security.

PERSONAL DATA

What personal data/information will WWDP ask me for? 

WWDP is a website. So that you can use WWDP, we need you to register with an email address. WWDP is part of a research study. This means that we may also ask for the following information:

  1. Your name
  2. Your date of birth
  3. Your address
  4. Your telephone number
  5. Your gender

Why does WWDP need to collect this personal information? 

Because peer support group of WWDP is part of a research study, the research team needs accurate and up-to-date information. Collecting this information means that your principal investigator can monitor your progress.

Where are my data kept? 

The WWDP website is hosted by DAWN. This means that the data collected by WWDP is held on a database managed by DAWN. This database is located in a securely protected and approved provider cloud solution. When you register for WWDP you are connected to a name and an email as you need the name to set up a portal login. Additionally, because your data is confidential, the data that WWDP collects is held in an encrypted state.

Who can access my personal information? 

We have to follow strict privacy, confidentiality, and online security procedures.

Your personal information will only ever be accessed by the research team. WWDP will never share your information with other parties without your written consent. For example, if access is needed to your WWDP account due to a technical error we will ask for your written consent for a member of the technical team to do this.

Does WWDP collect other information about me? 

Every account has a username, email, first name, and last name to log in to the portal. To help the team at King’s College London improve the website, WWDP collects information about your usage of WWDP. I.e. the length of time you spend logged into WWDP.

Does WWDP share my information with anyone else? 

If you have a technical problem or question and you submit a question/concern via our team contact, then King’s College London will receive the following information:

  1. Your email address
  2. Information you type in your message

In order to solve a technical problem, support from the DAWN software team who programmed WWDP may be needed. We will never share your information with DAWN or ask them to look into the problem without gaining your informed consent first.

WWDP will never share your personal information with anyone without your consent.

WWDP – Contact Us here

Links & Podcasts

Some sessions or podcasts may contain links to other websites which are owned, operated or maintained by third parties. If you click on a third-party link, you will be directed to that website in a new tab. We provide these links as helpful sources of further information, not as an endorsement, authorisation or representation of our affiliation with that third party, nor as an endorsement of their privacy or information security policies or practices. We do not have control over third party websites and we do not have control over their privacy policies and terms of use.

Who can see what I write in WWDP? 

When you join WWDP, you will see peer supporters as facilitator. Your facilitator is a non- professional who is between 45-65 age range and living with type 2 diabetes and will provide you with support as motivation during your time on the programme by online messaging. Your facilitator will be able to see your personal details.

In order to ensure that their support is relevant and specific to you, and to ensure your wellbeing, your facilitator will be able to see your messages so your conversation on the peer group and i.e. your goals and process.

Principal investigator will be able to review your online messages with your facilitator and group. The content of these messages will be kept confidential at all times.

The WWDP Team at King’s College London 

Chief Investigator for WWDP: RN, MSc Deniz Bozkurt

Academic supervisors: Dr Maria Duaso and Professor Jackie Sturt

The legal bits 

Information collected by WWDP will be in line with the General Data Protection Regulation (2018). Our lawful basis for collecting this information includes:

  1. Function of a public task
  2. Vital interest
  3. Legitimate interest
  4. Consent

Your rights 

Your personal data will be processed in accordance with your rights under data protection legislation.

Your rights are:

  1. right to be informed
  2. right to gain access to your data
  3. right of rectification (e.g. change inaccurate information)
  4. right to erasure (e.g. to delete records held about you on the WWDP platform)
  5. right to restriction (e.g. to stop processing information about you)
  6. right to portability (e.g. to move or transfer your data)
  7. right to object (e.g. to change your mind)
  8. right not to be subject to automatic profiling or decision making (e.g. to know if a decision was made by a computer rather than a person)

 Cookies 

The WWDP website does not use marketing cookies. This means that your browsing information is not used for advertising or commercial purposes. The WWDP website does use one type of cookie – this is an essential cookie which is used to make sure you get a consistent user experience. It is required for the website to maintain where you are up to in the programme. It also means it can show you personalised information when you are signed in.

Summary

Your personal information will be managed and shared in line with the General Data Protection Regulations (2018) and common law duty of confidentiality.

  1. WWDP will ask for personal information. This information will be stored in line with GPDR data privacy and security standards.
  2. WWDP is developed by King’s College London and owned by Professor Debra Anderson and Professor Jackie Sturt.
  3. WWDP will collect anonymous information about how many times and the length of time spent logged in to WWDP. This information will be used by King’s College London to improve the WWDP website.
  4. Filling in the WWDP contact us form, means your email address and typed message will be seen by the King’s College London team.
  5. If you experience a technical problem, the WWDP team at King’s College London will respond to your concern and gain your consent for the web-developers of WWDP to access your information.

If you have any concerns or further questions, please contact the WWDP team using the form which you can find in the Contact us page.

You can find more tips for staying safe online at www.cyberaware.gov.uk.

The following video also provides a useful overview of patient data – vimeo.com/264239790

WWDP – Contact Us

If you do not agree to this, please contact the WWDP team here.